Stephen Gentles

  • CIHR Health System Impact Fellow, Autism Ontario and Offord Centre for Child Studies

Stephen Gentles is a postdoctoral CIHR Health System Impact Fellow working with Margaret Spoelstra at Autism Ontario and Stelios Georgiades at the Offord Centre for Child Studies. He has a background in health information and clinical epidemiology, and his program of research is aimed at helping parents (caregivers) of children with development disabilities by developing knowledge and tools to support the important roles they play in pediatric care.

Twitter @SteveGentles

Current Activities

At the Offord Centre, Stephen is working with Stelios Georgiades and his team to implement and support the expansion of the Pediatric Autism Research Cohort (PARC) study.


  • Gentles, S. J., Nicholas, D. B., Jack, S. M., McKibbon, K. A., & Szatmari, P. (2019). Coming to understand the child has autism: A process illustrating parents’ evolving readiness for engaging in care. Autism, 20(44), 136236131987464–14.
  • Gentles SJ, Nicholas DB, Jack SM, McKibbon KA, Szatmari P. Parent engagement in autism-related care: a qualitative grounded theory study. Health Psychol Behav Med. 2019;7(1):1-18,
  • Phoenix M, Nguyen T, Gentles SJ, VanderKaay S, Cross A, Nguyen L. Using qualitative research perspectives to inform patient engagement in research. Research Involvement and Engagement. 2018 Jul 06; 4:20.
  • Gentles SJ, Vilches SL. Calling for a shared understanding of sampling terminology in qualitative research: Proposed clarifications derived from critical analysis of a methods overview by McCrae and Purssell. International Journal of Qualitative Methods. 2017 Aug 18;16:1-7.
  • Gentles SJ, Charles C, Nicholas DB, Ploeg J, McKibbon KA. Reviewing the research methods literature: Principles and strategies illustrated by a systematic overview of sampling in qualitative research. Systematic Reviews. 2016 Oct 11;5:172.
  • Gentles SJ, Charles C, Ploeg J, McKibbon KA. Sampling in qualitative research: Insights from an overview of the methods literature. The Qualitative Report. 2015 Nov 9;20(11):1772-1789. Full text:
  • Gentles SJ, Jack SM, Nicholas DB, McKibbon KA. A critical approach to reflexivity in grounded theory. The Qualitative Report. 2014 Nov 3;19(44):1-14. Full text:
  • Stephen J Gentles, Dawn Stacey, Carol Bennett, Mohamad Alshurafa, Stephen D Walter. Factors explaining the heterogeneity of effects of patient decision aids on knowledge of outcome probabilities: a systematic review sub-analysis. Systematic Reviews. 2013 Oct 21;2:95.
  • Reem A. Mustafa, Nancy Santesso, Jan Brozek, Elie A. Akl, Stephen D. Walter, Geoff Norman, Mahan Kulasegaram, Robin Christensen, Gordon Guyatt, Yngve Falck-Ytter, Stephanie Chang, Mohammad Hassan Murad, Gunn E Vist, Toby Lasserson, Gerald Gartlehner, Vijay Shukla, Xin Sun, Craig Whittington, Piet N Post, Eddy Lang, Kylie Thaler, Ilkka Kunnamo, Heidi Alenius, Joerg J. Meerpohl, Ana C Alba, Immaculate I.F. Nevis, Stephen Gentles, Marie-Chantal Ethier, Alonso Carrasco-Labra, Rasha Khatib, Gihad Nesrallah, Jamie kroft, Amanda Selk, Romina Brignardello-Petersen, Holger J. Schünemann. The GRADE approach is reproducible in assessing the quality of evidence for quantitative evidence syntheses. J Clin Epidemiol. 2013 Jul;66(7):736-42; quiz 742.e1-5. Epub 2013 Apr 23.
  • Mohamad Alshurafa, Matthias Briel, Elie A. Akl, Ted Haines, Paul Moayyedi, Stephen J. Gentles, Lorena Rios, Chau Tran, Neera Bhatnagar, Francois Lamontagne, Stephen D. Walter, Gordon H. Guyatt. Inconsistent Definitions for Intention-To-Treat in Relation to Missing Outcome Data: Systematic Review of the Methods Literature. PLoS ONE. 2012;7(11):e49163.
  • Gentles SJ, Lokker C, McKibbon A. Health information technology (HIT) to facilitate communication involving health care providers, caregivers and pediatric patients: a scoping review. J Med Internet Res. 2010;12(2):e22.

For further publications click here.

Contact Stephen


Research Interests

  • Pediatric Autism Research Collaborative (PARC) study
  • Autism Classification System of Functioning: Social Communication


Education, Memberships & Certifications

  • PhD, Health Research Methodology, McMaster University
  • INSAR member